What is CDH?
Congenital Diaphragmatic Hernia (CDH) occurs in approximately 1 in every 2,500 births (1,600 cases in the U.S. each year). The cause of CDH is not yet known. The diaphragm is formed in the first trimester of pregnancy and controls the lungs' ability to inhale and exhale. CDH occurs when the diaphragm fails to form or to close totally and an opening allows abdominal organs into the chest cavity. This inhibits lung growth. Every patient diagnosed with CDH is different. Survival rates depend on the types and number of organs involved in the herniation and the amount of lung tissue available. There are many surgical procedures and complications that may or may not occur with each individual, including in utero surgery. Roughly 50% of babies born with CDH do not survive. Of the 50% that do survive, most will endure long hospital stays, feeding issues, asthma and other problems. A few of the survivors suffer from severe long-term medical issues.
Click on the links below to learn more about CDH from CHERUBSS:
CDH Research Info - Information on research of Congenital Diaphragmatic Hernia
Anatomy of the Diaphragm - In depth description from the Children's Hospital of Philadelphia + CDH VIDEO
CDH at APSA - American Pediatric Surgical Association information on CDH
Types of CDH - Learn the difference between the types of CDH
Types of Treatments - In utero treatments, ventilation techniques and more
History of CDH - When it was discovered, treatments, and more
CDH Statistics - Basic information and statistics about Congenital Diaphragmatic Hernia
CDH Q&A - Frequently asked questions about CDH
Common Medical Terms - Easy-to-understand definitions of medical terms frequently used with CDH patients
CDH Research Site - CHERUBS Long-Term CDH Research Database
CDH Videos - Informational videos by various hospitals, our CDH Conferences and more
CDH Library - Links to 100's of CDH Research Articles, web sites, hospitals, charities and more
Info for Expectant Parents - More information and support for parents expecting a baby with CDH