I wrote that story (previous chapters) almost 2 years ago, but it seems like a million years. Reading it, I realize I was still in my "martyr stage"; a stage all of us parents of disabled children go through. Now, I'm back to "normal people stage" and Shane is almost 5. He is walking (actually running around the house and leaving a trail of toys behind him), eating a few ounces by mouth at a time, is completely off the ventilator and oxygen, and had his trach removed a year ago. He wears glasses and hearing aids and is going to a preschool for the deaf. He begs constantly to watch the SAME episode of Sesame Street over and over again; I guess that’s typical pre-school behavior.
Shane is doing really well- still carrying around "Baby", watching Sesame Street non-stop, eating much better by mouth, has learned 10 sign-language signs, and starts home-school this fall (after going rounds with the local school board who refused to put him in the county's only deaf class and wanted him in the L.D. class instead- where no one knew sign language, even though the deaf class is only 1 year ahead of him and has only 3 students). He plays with cat, loves going outside and riding in the car, and loves to be read to. He makes the silliest faces and has a wonderful sense of humor- you just can't help but smile when he does. I feel like the luckiest woman in the world to be chosen to be this wonderful little boy's mom.
1998 has been hard on us- a house fire (in which Jeremy was seriously injured), e-coli (food poisoning from seafood), a tornado that hit our house, yet another miscarriage, I lost my best friend, my parents are divorcing after 25 years, I had a hard time coping with the birth of my new niece who was born near the due date of the baby I lost last year. With all that's happened, my depression really hit hard for a while as I tried to cope with everything.
Now we're back on track. I have a new job, the support group now covers 47 states and 8 countries and is keeping me busy- so you can say I work 2 full-time jobs. We're trying for another baby again and we finally feel like life is going well and we're almost "normal". I knew we would have it rough after Jeremy broke that mirror 3 months after we were married! LOL 2 months to go and the 7 years of bad luck is over!
(to be continued...)