In memory of Shane Torrence (1/28/93 - 9/11/99)
A mom on a mission raising awareness of the condition that took my only child at age 6 and a half - Congenital Diaphragmatic Hernia CDH takes the lives of 15,000 children every year and harms 15,000 more.
Will you care?

Friday, May 11, 2012

April 19 - International Day of Congenital Diaphragmatic Hernia Awareness

April 19th is the International Day of Congenital Diaphragmatic Hernia Awareness.  CDH families in 53 countries participate, 15 governors proclaimed the day for 2012, parades were held in 7 cities and even Capital Hill got in on the action this year.

I asked for and received a proclamation from Gov. Perdue of North Carolina.  I have to confess I always thought proclamations were just a piece of paper but I admit, it felt great to get this in the mail and feel like I made a difference for all the CDH families in North Carolina.

On April 19th, this is how I participated in the Day of CDH Awareness this year in the Parade of Cherubs in Washington DC.....

There have been newspaper articles and TV interviews.  We even got to talk to over 50 senators offices about the CDH Research Bill.

There is so much really good stuff going on at CHERUBS.  A lot we haven't even gone public with yet.   It feels like the cherubs and angels are opening doors left and right for us to help these babies.

We're finally doing it, Shane.  <3   I just wish you were here marching with us.

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