In memory of Shane Torrence (1/28/93 - 9/11/99)
A mom on a mission raising awareness of the condition that took my only child at age 6 and a half - Congenital Diaphragmatic Hernia CDH takes the lives of 15,000 children every year and harms 15,000 more.
Will you care?

Tuesday, May 25, 2010

Working on the Angel Ball in memory of Shane

This is a huge event for me this year... along with the conferences that I'll talk about in some other posts.   Craig is planning a Golf Tournament and I'm planning an Angel Ball... both of us volunteering in memory of Shane.   I'm inviting everyone to buy tickets and join us at this wonderful event for a great cause!!!!!!

Tickets and Sponsorships are now available for our 2010 Angel Ball at the Hilton near Duke in Durham, NC

CHERUBS Masquerading Angels Ball

October 30, 2010
Hilton near Duke, Durham, NC

Formal, black and white masquerade ball to benefit CHERUBS, a 501(c)III non-profit organization founded to help families affected by Congenital Diaphragmatic Hernia through promoting and conducting research, raising awareness and supporting families through dozens of free services.

We have 4 celebrity guests so far!!!   Including a TV star and 3 time Grammy award winning musician. All will be announced soon!  :)

2010 CHERUBS Masquerading Angels Ball

October 30, 2010
6:00 pm - Midnight

Masquerading Angels - CHERUBS Angel Ball - October 30, 2010 Durham, NC

Formal Charity Masquerade Ball on the eve of Halloween

Hiton Durham near Duke University
3800 Hillsborough Road, Durham, NC 22705

Event:  CHERUBS Masquerading Angels Ball

Date:  Saturday, October 30, 2010

Time:   6:00 - 7:00 cocktail hour, 7:00 - Midnight Ball

Location:   Hilton Durham near Duke University, 3800 Hillsborough Road, Durham, NC 22705

Beneficiary:  CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support. Money raised from this event will go to CHERUBS to fund services to further help families of children born with Congenital Diaphragmatic Hernia.  CHERUBS is a 501(c)III international children's charity.

Attire:  Our FORMAL black and white masquerade ball encourages men to wear tuxedos and women to wear white.  Dust off your wedding dress ladies, you are encouraged to wear it again or you can opt for a little black dress.   FORMAL period costumes are welcome.   Masks are required, some will be provided.   Not acceptible; typical Halloween costumes and masks.

Tickets:  $50.00.  Tickets include entry to event, casino, auction, ballroom.  It also includes entertainment, hors d'oeuvres, drinks, 2 raffle tickets, 1 bar ticket, 2 casino chips.

Age Requirement:  You must be 21 years old or older to attend.   CHERUBS reserves the right to refuse ticket sales when necessary.

Celebrity Guests:   Will be revealed soon!

Live Band:   Will be revealed soon!

Casino:   Take a spin on the roulette wheel or try your hand at blackjack in our Casino Lounge.

Silent Auction:   Come browse our auction items donated by celebrities, local artists, local businesses and members of the charity.

Photographs:   Have your formal portrait taken, a reminder of a wonderful night.

More details coming soon....

Our 2008 CHERUBS Angel Ball was a success!

The crepe myrles and lilies were gorgeous outside and the flowers were stunning inside.  The food was amazing, created by several local caterers who indeed created "An Angelic Taste of the Triangle".   The band was rock'n!   The Master of Ceremonies was charming.   The hostesses were beautiful.   The volunteers were incredible.   The auction was wonderful and exciting.   The raffles were fun.  The photographs are stunning.   The room was full of angels.

We danced, we ate, we bid on items and we learned about CDH.  All for a great cause and the event was fun and enchanting, thanks to our incredible event planners and the ladies at the Raleigh Junior Women's Club.

The entire night was magical - so magical that we even had a proposal at the event!   What better compliment is there than that?

Save the Cherubs Congenital DIaphragmatic Hernia Awareness Campaign
photo by Mandy Sroka Photography

Our Organization:

CHERUBS is a 501(c)III organization located in North Carolina.   CHERUBS serves families of children and adults born with Congenital Diaphragmatic Hernia (CDH).   As of April 2008, we have over 2250 members in all 50 states and 33 countries.  Our Board Members include the founding father of in-utero surgery, genetic counselors, epidemiologists, pediatric surgeons and parents of children born with CDH.  We are a volunteer-run organization and a United States Internal Revenue Service recognized 501(c)III Non-Profit Organization.

What is CDH?

Congenital Diaphragmatic Hernia (CDH) occurs in approximately 1 in every 2,500 births (1,600 cases in the U.S. each year).  The cause of CDH is not yet known.  The diaphragm is formed in the first trimester of pregnancy and controls the lungs' ability to inhale and exhale.  CDH occurs when the diaphragm fails to form or to close totally and an opening allows abdominal organs into the chest cavity.  This inhibits lung growth.     The cause is not yet known.

Roughly 50% of babies born with CDH do not survive.   Of the 50% that do survive, most will endure long hospital stays, feeding issues, asthma and other problems.  A few of the survivors suffer from severe long-term medical issues.< CDH occurs as frequently as Spina Bifida and Cystic Fibrosis, yet there is very little research being done and virtually no media coverage.

No comments:

Post a Comment