Shane

In memory of Shane Torrence (1/28/93 - 9/11/99)
A mom on a mission raising awareness of the condition that took my only child at age 6 and a half - Congenital Diaphragmatic Hernia CDH takes the lives of 15,000 children every year and harms 15,000 more.
Will you care? http://www.cdhsupport.org

Showing posts with label nc. Show all posts
Showing posts with label nc. Show all posts

Monday, October 25, 2010

Angel Ball, CHERUBS, Shane and Me on the news

News 14 Carolina did an interview today about our Masquerading Angels Ball! 

In Depth: Dawn Williamson, Cherubs

An event this weekend will help unmask the cause of a life-threatening condition among children that doesn't get a lot of attention. It's called congenital diaphragmatic hernia or CDH and News 14 Carolina's Tracey Early sits down with Dawn Williamson, the founder and president of the non profit group "Cherubs," to talk about this year's event.

In Depth: Dawn Williamson, Cherubs

Monday, June 21, 2010

Shane in the APX Gives Back Contest video


http://www.youtube.com/watch?v=Qq-y5unxyQg
This video was done for APX after I won 2nd place in their Memorial Day contest.  It features many cherubs and raises awareness!   and video of Shane! Feel free to repost this vide, this press release or any of our information to help promote CDH awareness.

Tuesday, May 25, 2010

Working on the Angel Ball in memory of Shane

This is a huge event for me this year... along with the conferences that I'll talk about in some other posts.   Craig is planning a Golf Tournament and I'm planning an Angel Ball... both of us volunteering in memory of Shane.   I'm inviting everyone to buy tickets and join us at this wonderful event for a great cause!!!!!!




Tickets and Sponsorships are now available for our 2010 Angel Ball at the Hilton near Duke in Durham, NC



CHERUBS Masquerading Angels Ball


October 30, 2010
Hilton near Duke, Durham, NC

Formal, black and white masquerade ball to benefit CHERUBS, a 501(c)III non-profit organization founded to help families affected by Congenital Diaphragmatic Hernia through promoting and conducting research, raising awareness and supporting families through dozens of free services.




We have 4 celebrity guests so far!!!   Including a TV star and 3 time Grammy award winning musician. All will be announced soon!  :)


2010 CHERUBS Masquerading Angels Ball

October 30, 2010
6:00 pm - Midnight






Masquerading Angels - CHERUBS Angel Ball - October 30, 2010 Durham, NC





Formal Charity Masquerade Ball on the eve of Halloween

Hiton Durham near Duke University
3800 Hillsborough Road, Durham, NC 22705




Event:  CHERUBS Masquerading Angels Ball

Date:  Saturday, October 30, 2010

Time:   6:00 - 7:00 cocktail hour, 7:00 - Midnight Ball

Location:   Hilton Durham near Duke University, 3800 Hillsborough Road, Durham, NC 22705

Beneficiary:  CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support. Money raised from this event will go to CHERUBS to fund services to further help families of children born with Congenital Diaphragmatic Hernia.  CHERUBS is a 501(c)III international children's charity.

Attire:  Our FORMAL black and white masquerade ball encourages men to wear tuxedos and women to wear white.  Dust off your wedding dress ladies, you are encouraged to wear it again or you can opt for a little black dress.   FORMAL period costumes are welcome.   Masks are required, some will be provided.   Not acceptible; typical Halloween costumes and masks.

Tickets:  $50.00.  Tickets include entry to event, casino, auction, ballroom.  It also includes entertainment, hors d'oeuvres, drinks, 2 raffle tickets, 1 bar ticket, 2 casino chips.      http://angelball.eventbrite.com/

Age Requirement:  You must be 21 years old or older to attend.   CHERUBS reserves the right to refuse ticket sales when necessary.

Celebrity Guests:   Will be revealed soon!

Live Band:   Will be revealed soon!

Casino:   Take a spin on the roulette wheel or try your hand at blackjack in our Casino Lounge.

Silent Auction:   Come browse our auction items donated by celebrities, local artists, local businesses and members of the charity.

Photographs:   Have your formal portrait taken, a reminder of a wonderful night.

More details coming soon....









Our 2008 CHERUBS Angel Ball was a success!






The crepe myrles and lilies were gorgeous outside and the flowers were stunning inside.  The food was amazing, created by several local caterers who indeed created "An Angelic Taste of the Triangle".   The band was rock'n!   The Master of Ceremonies was charming.   The hostesses were beautiful.   The volunteers were incredible.   The auction was wonderful and exciting.   The raffles were fun.  The photographs are stunning.   The room was full of angels.

We danced, we ate, we bid on items and we learned about CDH.  All for a great cause and the event was fun and enchanting, thanks to our incredible event planners and the ladies at the Raleigh Junior Women's Club.

The entire night was magical - so magical that we even had a proposal at the event!   What better compliment is there than that?





Save the Cherubs Congenital DIaphragmatic Hernia Awareness Campaign
photo by Mandy Sroka Photography




Our Organization:

CHERUBS is a 501(c)III organization located in North Carolina.   CHERUBS serves families of children and adults born with Congenital Diaphragmatic Hernia (CDH).   As of April 2008, we have over 2250 members in all 50 states and 33 countries.  Our Board Members include the founding father of in-utero surgery, genetic counselors, epidemiologists, pediatric surgeons and parents of children born with CDH.  We are a volunteer-run organization and a United States Internal Revenue Service recognized 501(c)III Non-Profit Organization.

www.cdhsupport.org

What is CDH?

Congenital Diaphragmatic Hernia (CDH) occurs in approximately 1 in every 2,500 births (1,600 cases in the U.S. each year).  The cause of CDH is not yet known.  The diaphragm is formed in the first trimester of pregnancy and controls the lungs' ability to inhale and exhale.  CDH occurs when the diaphragm fails to form or to close totally and an opening allows abdominal organs into the chest cavity.  This inhibits lung growth.     The cause is not yet known.

Roughly 50% of babies born with CDH do not survive.   Of the 50% that do survive, most will endure long hospital stays, feeding issues, asthma and other problems.  A few of the survivors suffer from severe long-term medical issues.< CDH occurs as frequently as Spina Bifida and Cystic Fibrosis, yet there is very little research being done and virtually no media coverage.




Friday, May 7, 2010

March of Dimes March for Babies Walk, Seeing an old friend and Mother's Day

Mother's Day weekend.... ugh.   I hate this holiday.   Don't get me wrong, I love my own mom to pieces and she should absolutely be honored on Sunday, as should my mother-in-law and all moms.  But for a grieving mom, it's a hard day.  It hurts.  A lot.   I literally would give my life for a card with Shane's handprints on it or a paper cup full of daisies from him.  Or now that he'd be 17, I guess a regular card and a hug from him would be more than enough.  But he's not here.   I don't get any more Mother's Days with him.   I know I should be grateful for the ones I did have... but I'm greedy.  I want my little boy here.   I do have good memories of Mother's Day mornings with my ex-husband making me breakfast in bed and Shane toddling into the bedroom behind him and leaning on the bed.  Cards from him, gifts from him (ok so his dad picked them out, but it still counts).   My first Mother's Day gift of a Precious Moments figurine still means the world to me as it sits on a shelf in my office.   I am blessed, I know that.  I am grateful.   But I just really miss Shane right now.  That doesn't mean that I'm not completely in love with my other two sons.  I am, and I am so so blessed to have them in my life and to have the opportunity to be a step-mom.  

It's been crazy busy around here.   CHERUBS is going non-stop with some pretty amazing things going on.   REALLY amazing stuff going on!   And I'm working on my regular job up to 50 hours a week right now.   Plus the boys on 2 baseball teams.  I am literally running on Mountain Dew lately.   But it's all GOOD stuff!  :)

2 weeks ago my hubby, boys and I participated in the March for Babies.   We walked in memory of Shane and in honor of B (Craniosynostois and Preemie) and G (Preemie).    It's rare that I get to do something for all 3 of my boys at once!!!!   Love all 4 of my guys!!!  :)    B even came in 3rd place in the race and G in 4th place!

One of my friends pointed out that Shane's photo (on my shirt) in this photo was "Shane between his 2 brothers".  Yeah, that had the waterworks starting!  LOL

I got to meet Erin finally too!  She walked in the march with us.  She lost Zoe not too long ago to CDH too.  Erin and I have become good friends and I think the world of her and Zoe holds a piece of my heart too.   I get to hang out with Erin some more next week and am really looking forward to it!



And a few weeks ago I got to spend the weekend with one of my BFF's (yes, I said BFF!), Brenda.   That's here in the jeans below.  She's annoyingly gorgeous.  ;)  Brenda and I have been friends for 15 years and she's more like a sister than a friend to me.  Through it all... having Shane, losing Shane, divorce, CHERUBS stuff, losing Debra, miscarriages, etc.... she's been there.   Brenda lost 2 babies to CDH.  I met her a year after she lost Amanda and while she was still pregnant with Nicholas.  She's the 3rd member of CHERUBS.   After 1 phone call, we became friends for love.   Love you very much, Bren!   I never would've made it through the last 11 years without you!


Yes, a lot of my friends have dealt with CDH too... that's how we became friends.  What better friends than those who understand because they've walked in the same shoes?   And so many knew Shane.... not many people really did when we were so isolated for so many years because of his medical issues.  So those that knew him and loved him too.... how can I not feel like they are my family?

Happy Mother's Day to ALL moms this Sunday!!!!!   Whether your children are here or they have wings.  Motherhood doesn't end, ever.   Being a mom is the most wonderful job in the world.  Being a grieving mom (or dad) is the hardest job in the world.  But we're still moms.  

Tuesday, August 4, 2009

CHERUBS Adopt A Hospital CDH Program - Duke University Medical Center adopted in memory of Shane Torrence

Shane Torrence
(1/28/93-9/11/99)
Left-Sided Congenital Diaphragmatic Hernia


The family of Shane Torrence has donated funds as part of our Adopt A Hospital program to send CDH materials to childrens' hospitals who treat babies born with Congenital Diaphragmatic Hernia. Shane's family has chosen to adopt Duke University Medical Center, where Shane spent the first 10 months of his life. Donated were; CDH information poster, "Stories of Cherubs" Vols I & II, Congenital Diaphragmatic Hernia Awareness Ribbon pins, Parent Reference Guides, Newsletters and brochures. This is enough CDH information for 100 families.